Showing posts with label Dissociative Identity Disorder. Show all posts
Showing posts with label Dissociative Identity Disorder. Show all posts

Tuesday, February 12, 2013

The Jaws of Hell

It recently occured to me that of all the things I have talked about on my blog, during this healing journey, one thing I have not really talked about is how it has affected me spiritually.  I have alluded to it a couple times, but never really discusseed it.  I don't know why.  It's not that I was intentionally holding back.  Maybe it is just an unspoken feeling I have that one's relationship with God is a deeply personal thing. 

Yes, that is likely what prevented me.  It's kind of like this....a great piece of advice I received when I got married was: when you are upset with your spouse, don't talk to other people about it.  The rational being that later his awesomeness (as you see it) later makes you inclined to forgive him, but your mother (or friend...), who doesn't see him as quite so adorable is less likely to forgive him.  I guess in that same light, it was hard for me to talk about the difficulty I have been having with God, because I don't want to pass on my frustration to anyone else, and then have them not 'bounce back' when I do.

Fortunately though, my relationship with God was strong before all this healing stuff started, and though the relationship has been rocky, I am mending the wounds.  In fairness, to myself, I must say, that DID has played a big part in the seperation I have felt from God. 

I don't really want to get into that right now, suffice it to say, that some how, some part of me decided that the Spiritual aspect of myself was much too precious and too pure to be subjected to all the filth that was about to come forth.  So the Spiritual One was whisked away to a far, far room of my Haunted Mind.  It took me a long time to understand what had happened and why.  Then to develop some inner co-operation to bring her back.  I know that probably sounds really strange, but rather than thinking of it as strange, I hope you can see that it is actually a testament to the amazing power of the mind. 

Perhaps, I will write more about that another day, but today it feels like a side-trip, so back to my main point.  Even though I haven't really talked about the spiritual aspects of my healing here on the blog, I am writing a book about it.  The book I have wished for to help me, but couldn't find.  Good grief, as I write that it sounds maybe a bit egotistical, but here's hoping you know me better than that.

My intent is to help others navigate this rocky path any way that I can.  That's all.  So, the first chapter of the book is about the spiritual divide that has been part of the process for me and why it happened (aside from DID).  The rest of the book is about healing that divide.  The first chapter is tenatively called, "The Jaws of Hell"  from Doctrine and Covenants section 122...". . .if even the jaws of Hell should gape after thee. . . (paraphrased because I am too impatient to look it up right now). 

As I pondered and later researched "the jaws of Hell", I learned that the phrase has been used at least since medeival times, likely longer.  It was very common in their art.  I just have to show you a picture I found. 


Photo Attribution:  HERE
Isn't this picture great?  I showed it to my daughter, Vienna, but she didn't share my enthusiasm. I don't get it.   And yes, in case you were wondering, this whole blog post IS just so I could share this picture.  I think it is perfect and I am wondering if I can get permission to put it in my book!

So can any of you reading this relate?  If you would like to tell me about your "jaws of Hell" experience (meaning that you felt separated from God due to anger, shame, DID, or another reason).  I would love to hear YOUR story.  As always you can share here, or privately by sending me a PM to lesliesillusions at gmail.

Oh, and have I told you lately...thanks for reading and sharing this journey with me.

Wednesday, October 31, 2012

Embracing Fear and Conquering with DID

I have a severe phobia of the dentist.  I mean severe.   It's the chair.  Yes, not the shot, or the drill, it's the chair.  Lying in the chair represents submission, and as you can imagine that terrifies me.  You sit back in that chair and open your mouth, and then trust. 

Trust is a big issue for survivors of childhood abuse.  It is really a struggle for me.

My fear started when I got the reminder call about the appointment.  It increased as the time approached. I was emotional and distracted. The day of the appointment I was a basketcase, I couldn't concentrate.  I wish I was exaggerating, but I am really not. 

As I sat in the lobby filling out the new patient paperwork, I knew that as soon as I started walking toward the chair I would become, emotionally a child.  I would be paralyzed by fear and unable to speak up or advocate for myself.  I know this because it happens everytime I go to the dentist.  So I wrote a note to my new dentist and explained my situation.  The dentist, bless him, read my note and then came out to the lobby and sat and chatted with me for a moment to put me more at ease.  That was wonderful, but still when he said, "Come on back."  It happened.  The paralysis set in.  I was like a helpless child.

I sat in the dreaded chair, and the hygienist began the cleaning.  That's when it hit me.  I forgot to ask for laughing gas for the cleaning.  I hate metal touching my teeth, and what do they do in a cleaning but scrape your teeth with metal...argh!  As an adult, I would just put up my hand to stop him and ask for laughing gas, but I was not an adult at that moment.  I was a helpless child at the hands of an "authority figure".  I could not make requests I could only wait helplessly until it was over.

My body tensed, and my heart rate increased as my panic grew.  How could I get myself through this situation.  Desperately, and with frustration, I thought, "Why can't I dissociate myself out of this?"  Then a glimmer of hope came to me, "Why can't I?  Where should I go?"

I was ready to mentally transport myself somewhere else.  I figured I have been doing it unconsciously since childhood, so this time I would do it consciously.  That was my only goal.  As I considered where to go...it would have to be somewhere I felt comfortable, and somewhere well-established.  Some how I felt that I would not have the "strength" to go to a new place, I needed to go to a comfortable place in my mind I had been to before.

I chose my DID Landscape.  This is a common thing among people with DID, to have an organized space in one's mind for all one's parts.  I don't want to give too many details about my DID landscape, but suffice it to say that even though there are parts there that have painful memories, and one part in particular that I am avoiding, it is still a beautiful place that I created for traumtized parts to heal.  So I went there myself as I have many times before in therapy.

I stood at the entrance and thought, "Now what?"  Then, an idea came to me to go to the part of me that holds the memory that causes most of my dentist phobia.  That part is a  young girl, 4 yrs old (she has a name, but I am not comfortable sharing that). 

I approached her and took her in my arms, lovingly.  I rocked her and stroked her hair.  I spoke to her quietly, "I am so sorry for what happened to you.  So, so sorry.  I know you are scared, but what is happening now is different.  Feel what the body feels right now, and see that this is different.  I promise, I will never let anyone hurt you again."

Something amazing happened, the terror I felt eased, a very peaceful, healing feeling replaced it.  I felt so good.  I marveled at it.

At that moment, the hygenist (who was very gentle) slipped and that sharp metal hook hit my lip.  I thought, "Buster, if you do that again we are done."  And I meant it.  If that happened again, I would raise my hand and simply say, "I'm done.  I can't do any more today."  No explanation needed, it's my body and if I say stop, it stops.  That is when I realized, I was back in adult mode!!!  I can't express how incredible that felt.  I was no longer a terrified child helplessly submitting to whatever the "authority figures of the moment" subjected me too.  I was an adult that could speak up for my needs and defend my boundaries.  I was exhilarated.  I could hardly believe it.

When the cleaning was done, I glanced at the clock on the wall.  I was stunned. How could I have been at the dentist for an hour?  It literally felt like 15 minutes.  As I got up from the chair, my leg muscles, knees and ankles were so stiff and painful that it was difficult to get up (I hadn't had pain when I came in) but emotionally and mentally I felt like I could fly. 

Anthony Maragou


Photo Attribution: Anthony Maragou

Tuesday, October 23, 2012

Beneath the Mask: Dissociative Identity Disorder

I've been thinking about writing about this for some time. I have even hinted at it, some might say I did more than hint. Anyway, I did not think I had said it directly, so here it is...

I have Dissociative Identity Disorder (DID).



Michael Drummond

My 16 yr old son asked me the other day, "Mom is DID the same thing as Multiple Personality Disorder (MPD)?"

I had told my teenage children quite awhile ago that I have DID, but I guess he didn't make the connection.  I explained that yes they are the same.  He then had more questions.  Can the parts really be different sexes? Yes. And have different medical issues?  Yes.  Different ages?  Yes. 

I could be wrong but I sensed a bit of "Wait a minute, you didn't tell me it was like THAT."  My point here is that even though he lives with me, he didn't realize.  DID is NOT obvious.  People with DID have families, hold down jobs, get college degrees...all the things that "singletons" do. (Yes, we call you guys singletons.)  The only difference is that our divided mind helps us be able to take care of all these day-to-day things while the skeletons rattle in the closet.

So the first thing I want you to understand about DID, is that you could know someone, even live with them and not realize they have it.  It is not obvious, it is not like it is portrayed by Hollywood.

Before I tell you a little more about how I experience DID, I need to make a disclaimer that I do not speak for everyone that deals with this disorder.  It is much more common than you would think; I have met others with DID, in real life and on line.  There are forums and hospitals and therapy groups for people dealing with this.  What I have learned from sharing with other "multiples" is that while we have much in common, there are also many differences.

I hope that by explaining a little of why I believe my "system" works the way it does, will help you understand why two people with DID can experience it so differently.  First we need to consider how it begins.  DID is commonly believed to begin in childhood as a result of severe, and often repeated trauma.  I think of it as a God-given gift to help child survive and cope.  A child's mind does not have the experience, the coping skills etc to deal with such trauma, so the mind resorts to chronic dissociation.

Remember I explained before that dissociation is something that everyone does.  Daydreaming or highway hypnosis (when you drive somewhere and then feel startled when you realize you remember very little about the drive...you were on "auto-pilot").  This sort of dissociation is normal.  But when a traumatized child uses dissociation over and over as an escape to the point that it becomes chronic, then it crosses in to the disorder side of the spectrum.  Because the abuse each person suffers is different, the severity of dissociation can vary as well. 

The way the "system" is set up varies greatly as well.  When I say the system, I mean the parts or alters.  Remember My Haunted Mind, where in each room there is someone that holds some memory or memories of my past.  What I didn't mention in that post is how real those "people" in the rooms feel to me. 

I want to tell you that I know they are not real and yet I can't...and let me tell you why.  This is a conversation that I have had with my therapist more than once.  I will mention to him the name of a part and say, "I know I need to help _____________ .  She's crying and upset and so alone, but I can't."

You have to understand that helping her means remembering what she knows, feeling the pain she feels, the pain she has held for me all these years.  The pain, emotional and physical, of rape.  Can you understand why I don't want to help?  It is not a matter of just giving her a hug, it's hearing what she has to say and feeling it.  So I tell myself and my therapist, "I don't have to help her.  She is not real.  She's part of me and therefore I can ignore her and keep that part of myself buried if I want to."

Doesn't that sound like a good solution?  I wish it worked.  But it doesn't.  Whenever I say or think that, the walls in the Haunted Mind start to melt and all the pain held by all those children in my mind comes rushing to me at once.   I fear that the pain will separate me from my tenuous hold on sanity.  I wonder, "Is this what a nervous breakdown feels like?"

To stop the pain, to stop the melting walls, I surrender.  "Ok, ok," I say to myself.  "She's real."  Not in a physical sense, of course, but in my mind she is real.  She has a name, and her own personality.  I can picture her in my mind's eye...and most of the time when I see her she is crying.  How can I then not go to her?  There in is my dilema.  I must help her.  What kind of monster would I be if I didn't? And yet helping her terrifies me.

I believe that at one point in my childhood, I thought if I was a boy then the abuse would not happen.  It didn't work, and now there is a little boy part with memories of his own.  I don't know his name, and really I don't want to know anything about him...and yet, I know in time, I will have to accept him too.

Another time I must have wished for a teenage brother to protect me. . .and so it goes.

The goal of therapy is either integration or co-operation between the parts.  I say "or" because some multiples do not wish to integrate.  They feel they will lose something in the process.  For me, I do aim for integration.  I think of it as my parts coming together, holding hands, sharing the pain equally, but also sharing joy equally.  We are not there yet, but someday. . .

I know I am taking a huge risk in sharing this with you.  I already feel that sharing that I was abused makes me INVISIBLE or an Emotional Leper and this because people don't know what to say so they don't say anything.  So why in the world would I tell you something that is going to make you look at me like I am some sort of Circus Side Show (my apologies to my friends with DID...that is certainly not how I feel, just how I fear others may see this).

I'm sharing for two reasons.  First I hope you will see that DID/MPD is really not "freaky" or "crazy".  Some of you that read this blog know me in real life and can say, "I never knew."  That is the point.  The whole reason for the dissociation is to hide things.  To hide the pain and the abuse from everyone including me.  AND then to hide the dissociation.  I may have younger parts of myself that feel absolutely real to me, but the rest of the "system" keeps them hidden from the outside world to protect them.   I want people to see that this is not "crazy", not what it is portrayed in the media as, but rather a creative way to deal with trauma no child should ever have to deal with. Not all survivors have DID, but many do...it is much more common than you realize. (I know I said this before, I'm repeating it for emphasis.)

Second, I share because I hope that if you understand the serious and life-long consequences of abuse, you will be more willing to take action to prevent it.  In our culture, we are far to likely to try and protect the abuser than the victim.  Case in point, I read an article from ABC News about Victim 1 in the Sandusky case.  When he and his mother approached the principal and the school counselor about the abuse they were told: "Jerry has a heart of gold and that he wouldn't do those type of things,"  And then they were told to go home and think about it.

Where was the concern for the victim???  This is the kind of thing I am talking about.  This has got to stop. 

The principal and the counselor told the boy's mother NOT to call the police, they would handle it.  Again at this point they were more concerned about "the nice guy" than the victim.  Fortunately, they were required by law to report it to the Child Protection Services so they did.  It was three more years before Sandusky was arrested (how many more violations occured during that time???) Because the authorities said they needed more witnesses...after all we can't prosecute this "nice guy".

We have to stop the denial, stop worrying about the perpetrators and start protecting victims.  The more we understand, as a culture, the effects of abuse, the more likely we will be to help the victims.  Or even better to work on prevention.  At least that is my hope.  And I'm putting myself on the line to help make it happen.

If you have any questions about DID, feel free to ask, I will answer them the best I can based on my onw experience and research, but remember I don't speak for everyone.

Photo Attribution: Michael Drummond

Tuesday, October 2, 2012

The Ghost in My House

My family is haunted by a ghost.  A ghost that does not seem to know its place, I mean aren't ghosts supposed to stay in one location?  This ghost goes everywhere we go.

I suppose I shouldn't be surprised, after all the ghost is me.


National Media Museum


There was another me, before.  Before the memories; she died.  That me was happy.  That me was self-confident. That me was spiritual.  In my other life, I could lasso the moon.  Then memories, like sharp daggers began to pierce me. Pain weakened me, but it was Shame, like a dagger, that pierced my heart and felled me.

And now a ghost lives in my house.  When I look in the mirror, I know the face looking back, the one that looks like my former self, is an illusion.  My family knows too.  One day I asked my oldest son if "all this" is hard for him.  He said, "Well, it is a little weird because I remember the way you were before.  But it will probably be easier for the younger ones because they don't remember." 

Owww, can I die twice? 

People ask me sometimes if my kids know.  Yes, the older ones do.  You've heard the saying about elephants in the room.  That subject that no one dares talk about.  I grew up with elephants, so no more.  No elephants, no secrets, no skeletons in the closet.  Not for me.  My teenage kids know about therapy, the Dissociation, the PTSD, and the abuse.

As far as Ghosts go, you could imagine me like Patrick Swayze's character in Ghost.  He wanted to desperately to get his old life back.  That is what I want too.  Eventually, he had to accept his new reality, say good-bye and let go.  I don't have to say good-bye to my family, thank goodness.  But I do need to accept reality and let go of the hope that I will return to be the person I was before. 

Thomas Wolfe said, "You can't go home again."  He had something else in mind, but I feel like that applies to me.  I can never get Innocence back.  Not the innocence that should have been mine as a child; that precious gem that should be the heritage of every child.  Not the innocence that I had up until a couple years ago.  I'm sure that some people see me as cynical now, and I couldn't argue.  Cynical? Yes, and skeptical too.  Pain and shame can do that.

But even though my cynicsm and skeptism, cast large shadows that threaten to overtake me, to become the whole of me, still I have a glimmer of hope.  I see it like a small candle in a window of my mind.  Quietly and steadily it flickers. 

Outside the storm rages, but the light burns on.  "Keep on moving,": the little light whispers.  "You can't go back, but you can move forward.  Something better awaits beyond the darkness.  Just keep moving towards The Light."


Brooklyn Museum Archives


Saturday, January 8, 2011

Haunted Mind

Completely unrelated to this post...I just have to share...I had to work on New Year's Eve.   When I got out of my van at work, I looked up and unexpectedly saw Cassiopeia.  Elated, I looked and sure enough, there was Orion.  I was surprised because living in the Pacific Northwest, my sky view is often limited by cloud cover.  Being able to see Cassiopeia and Orion felt like the perfect way to start a new year!

Since I wrote Stealing Guilt, I have had a delicious reprieve from the pain of the last year, but I woke up in a bad space yesterday couldn't shake it. (think PMS x 10) I felt like I apologized to my children a dozen times for snapping at them, for unusual things.  I knew they were unusual because of the surprised look on their faces.  You've probably seen it.  It's that "what's the matter with you?" look (teenagers are particularly good at this).  And then I would apologize again.  One would think that after the first couple times I would stop, but it isn't that simple.  I was mentally treading water furiously trying not to drown, and everything was an irritation to me.  I don't know how else to explain.  Some days are just really hard. A couple well-meaning people have told me in the past, "just don't dwell on the memories"...but that is not the problem. It may surprise you, but I have very few memories of what happened to me. I only remember enough to understand where all this pain is coming from.

So I have been pondering how I could explain what this is like to someone whose mind works quite differently.  I think like this: if you don't have Dissociation or PTSD then your mind is  like a giant conference room...you may have different areas set up for different activities (such as work, family, recreation).  Still you can see it all at once if you want to, or focus on one particular area if you choose to do that.

Some people (like me) courtesy of Dissociation and PTSD  have minds more like a Haunted Mansion..(cue eerie music).  There are many rooms in the mansion. I never know what is behind the doors. There is at least one or two doors of happiness, but many of the doors have some emotional pain, fear or anger from the past (from trauma) that needs to be processed by my adult mind. 

The doors do not have knobs, as least not on the outside.  I never voluntarily open them.  But that does not mean they stay closed...not at all.  Sometimes they open while I am sleeping and I wake up like I did yesterday sad and angry without really knowing why.  Sometimes there is an unexpected trigger that causes a door to open.  It may open a crack, or be thrown open.  Triggers can be like landmines, they catch you by surprise.  Sometimes they open during therapy, which is the best time because then I can process it with someone, and my therapist is pretty good at bringing me back out and closing the door.

The other thing to understand about the rooms is that besides the pain, there are the four walls dividing you from the rest of your mind.  When I am in one of these rooms struggling with the pain, it can be very difficult to remember that there are other rooms with happiness, or that there are any other rooms at all. This can cause memory lapses that sometimes affect people around me and can cause some embarrassing moments.  For example, yesterday I was telling a friend that I was happy to see her, that with the school break it had been so long.  She laughed (good naturedly) and said, "Leslie, you just saw me last week."  I immediately felt very confused.  Last week?  When? What for?  I had no memory of it, and no guesses.  I just looked at her blankly.  Then she reminded me that our children had played together the previous week.  Ah, about 30 seconds of THAT memory came to me, and I laughed (to cover my embarrassment).  You are likely thinking, "I forget things too, Leslie."  I know everyone forgets things, but what I experience is beyond normal forgetfulness.  If you know me in real life, just ask my family, they tease me about it all the time. 

I think it is those walls...the separation...that is the hardest.  To bare the pain, sometimes without the remembrance of happier times can be almost unbearable at times. To be fair, it works both ways, when I am in a room of happy feelings, I don't feel the pain.  I remember what I have thought about the pain, what I have written about it, but I don't FEEL it.  Not at all.  It feels like I am thinking of a pain someone else experienced and described to me.  I wonder about it, much the same as I imagine you do.  And when I am in a room of pain, I feel the same about happiness.  I see other people experiencing it and I wonder what it must be like because I think, "if I ever experienced THAT, I sure don't remember."

 One thing is certain, I have to look in all the rooms and deal with the feelings that are there. I MUST because holding it all back takes a toll on me physically and causes anxiety attacks.  This is one of the reasons for therapy, to clean out all the rooms, and take down the walls.  It's a long process.  What I hope for in the meantime, is that when I am snippy, or depressed that you will remember and remind me that there have been and will be happier times.